hi all thank you all so much for responding to my post, it is deeply appreciated. and yes i am not up on the site and how it works. i have rung a specialist in wimbledon ...clare rusbridge and she seems to be pretty sure its a disease called 'syringomyelia' which is really bad . my baby is having quite a rough nite so have not been on the pc. he is asleep rite now but wincing in his sleep its heartbreaking.